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Anyone With AS / Spondyloarthritis Have Bad Low Back Pain With Nausea Especially When Standing?

Anyone With AS / Spondyloarthritis Have Bad Low Back Pain With Nausea Especially When Standing?

If I bend forward at the pelvis my nausea gets better , but if I try to stand upright I get nauseous.... not sure if reaction to the pain or if when standing upright my spine is pressing on something. 🤔

Now that I have been rediagnosed I am cometely afraid they're missing something. They missed the errosions on my last MRI and I am reading the notes and they never mentioned the lesion I had in 2016 along the other SI joint. Where did it go?! (I emailed the Dr asking about it already). I don't… read more

posted September 30
A MySpondylitisTeam Member

@A MySpondylitisTeam Member hmmm maybe? I do get a bit dizzy when I stand and I had to look it up, but I just tested my heart rate and it was 85 after sitting a while and went up to 107 when I stood up. Tried again, 89 sitting and 99 standing. Not sure if that is normal or not. I do have wolff-parkinsons-white which causes tachycardia and pre-excitation.

I hardly sit or lay down until night time because I get too stiff. So I try to constantly move. The nausea would happen even if just standing and if I was still. I'm guessing that part was due to pain.

Since you have a vestibular condition, did they say you can go on biologic or how are you treating your AS?

posted September 30 (edited)
A MySpondylitisTeam Member

@pamyoung I just put the two together regarding the nausea may be related to back pain. I haven't talked to my Dr about it yet. I tend to get nauseous a lot randomly, primary thinks it may be GERD. Rheumatologist does know that sometimes I get a sore throat, nausea, and feel like I am coming down with the flu. He said he has heard of that with AS patients and it can be due to the inflammation. I decided to try high-dose NSAIDs just to see if pain related, and the nausea and most of the burning went away, so I am guessing that it is due to the back pain. I can stand up straighter now without the nausea. I have another phone appointment with rheumatologist in a couple weeks. I feel I should maybe get my cardiologist /specialist on boars too just in case.

posted September 30
A MySpondylitisTeam Member

Yes I have been on multiple biologics, but none of them have really worked since my first time with Embrel 12 or so years ago. I feel most of them have not worked snd caused side effects. I am about to try Taltz.
I have been off them more than on. I feel naturopath and accupuncture, nightly swimming and avoiding bread seemed to do the trick for years.
But as years went by snd I hsde more snd more surgeries for Endometriosis and PCOS and fibriods I took longer and longer to bounce back. I was chronically anemic for decades snd got infusions.
Ultimately I just hemorrhaged so bad and the pain got so bad a surgeon finally agreed to give me a hysterectomy.
Whole no longer anemic I feel I have never bounced back since then and some traumatic stuff at work that send me into a fair.

So now I see the usual doctors, naturopath, accupuncture, PT, Mayan abdominal massage therapist. I have went to a EDS hypermobility pt specialist, but found my original pt was way better. I went to pelvic floor therapy. I feel I have tried everything to be honest.
I just have so many things, I do think they are connected somehow.
It is just discouraging wondering if I'll ever feel like myself again... whatever that is.

posted October 1
A MySpondylitisTeam Member

@A MySpondylitisTeam Member, that is a good thing regarding the nausea. Could be GERD, guessing. Inflammation is the worst, I take meds for my pain, would rather not, but can't move without them. That is wonderful the NSAID's work for you! I would get your cardiologist / specialist is a good move! I wish only the best for you Lisa. 😍
God bless you,
@A MySpondylitisTeam Member

posted October 1
A MySpondylitisTeam Member

Do you Have POTS? My daughter and I do and it causes a lot of dizziness when changing positions. I also have had vestibular neuritis and it's horrible, I would spin snd spin and get nauseous and fall.
What ever it is I hope they figure it out znd make it better. For all I mentioned above accupuncture really helped.

posted September 30
Could Your Back Pain Be Caused by Spondyloarthritis? Read more >

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