Has anyone else experienced memory loss ? I used to be a computer programmer, now I can barely remember how to use excel. Does your family get mad because you forget?
I feel for all of yo. It awful and know one has a bloody clue. Constant 24/7. I was only diagnosed with AS about 6 years ago, but have osteoporosis and fibromyalgia for 20 years, such a lot of the above is likened to fibromyalgia symptoms as well. Meds work to an extent but flare a nightmare. Memory is nuts. Had such a high pressured job I had in the City for many years, can't believe I've been reduced to what I am now. But positivity, pacing and researching is key, exercise a must even if it only a little each day. We can do it. Hugs to all of you. ♥️ ♥️
Yes, yes & yes. I have severe brain fog that becomes embarassing to me. I asked my Dr. if it was caused by all of the meds that I take. He said that the meds contribute to the brain fog but also the disease itself cases it.
Chronic pain can be invisible! No one really knows what youre going thru underneath the surface, stay fighting you are a warrior!
@A MySpondylitisTeam Member Or when they say "I have pain too but I go to work everyday, suck it up... you look fine" that's the one that gets me.
They are clueless.
@A MySpondylitisTeam Member
I agree with you, my many flare ups(spondylitis, Spondylosis, fibromyalgia) and sometimes all 3 at once, a true nightmare - fibromyalgia it self is a butt kicker for me.
I ran my own micro business as a licensed general contractor (residential houses,garages, sidewalks, driveways, roofing, decks, patios, windows, doors, siding, you name it) and I'd at times be working 5 different jobsites and now it's hard to get dress and eat most day's.
Wishing you the best!
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