wondering if anyone else has crps slash rsd complex regional pain syndrome slash reflex sympathetic dystrophy and spondylitis | MySpondylitisTeam

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Top 10 Search Results for "wondering if anyone else has crps slash rsd complex regional pain syndrome slash reflex sympathetic dystrophy"

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Until Today I Never Heard If This, It Will Be Interesting To Know And Understand All If This Better As Time Go On.
A MySpondylitisTeam Member asked a question 💭
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A MySpondylitisTeam Member

I had never heard of it either. I was diagnosed in December. Trying to research and learn as much as I can. Good luck! 😊

Uveitis
A MySpondylitisTeam Member asked a question 💭

I have ankylosing spondylitis. Has anyone developed uveitis over time from your arthritis? I have had bilateral torn retinas, later a detached retina, and a cataract removed. I continue with inflammation in the eye I had surgery for detached retina. I am currently on Humira and methotrexate injections and take prednisone eyedrops until this inflammation quiets down before I can have eye surgery again. This has been an ongoing issue for me. Anyone have eye issues? If so, I would like to hear your… read more

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A MySpondylitisTeam Member

I have had two cataracts removed about 4 1/2 years before being diagnosed with spondylitis. I had no pain in my eyes, just foggy vision (like looking through misted (or iced up) windows).

Does Light Sensitivity Happen From AS?
A MySpondylitisTeam Member asked a question 💭

The sun was out very bright yesterday first the first time all winter. So I decided to go outside and sit. I had to face the dark paint on the House. My eyes started to burn badly. I had to come inside and shut the curtains and close my eyes. It was awful. Never had this before. This morning they feel all puffy. Anyone ever had this?

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A MySpondylitisTeam Member

I've found that sometimes my AS causes light sensitivity and my eyes get red and really irritated. Almost like terrible dry eyes. So I started using systane eye drops every night after my shower. Have… read more

I Recently Changed Specialty Pharmacy's For The Third Time In 14 Months Due To My Insurance.
A MySpondylitisTeam Member asked a question 💭

They are withholding my Humira script because I had a basil cell cancer spot on my ear removed last May 2023. I started it March 2023. It was biopsied, cut out, and healed perfectly. I've been without and the process looks like they need the derm doc to call them and let them know I don't have cancer. I had a bad rep who told me to get the information from them and call back with it. Then I was told they need the doctor to call. I understand but 2 hours on the phone of misinformation and… read more

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A MySpondylitisTeam Member

I've looked at what you wrote and will keep Cosentyx in mind when I see my Rheumatologist next. I knew that Humira comes with risk. It's higher than Cosentyx but it too has some. I really appreciate… read more

Has Anyone Tried Sea Moss? I'm Interested In Trying It And Was Curious If Its Helping Anyone.
A MySpondylitisTeam Member asked a question 💭
A MySpondylitisTeam Member

How bad it is

What Are Chances Of Living With Less Pain At Age Of 84?
A MySpondylitisTeam Member asked a question 💭

I am seeing a rheumatologist this week and am hoping for the possibility of a prescription for some of the self injecting pain relievers. Because of the Opioid problem, my regular doctor will only prescribe 12 Vicodin a year, which just isn’t sufficient when I need it. I may not need it very often, but might need one 4 days in a row. I have been taking Vicodin for 40 years and used to get a prescription of 60 a year, which I never abused. Sometimes my back will go into a spasm so severe… read more

A MySpondylitisTeam Member

I understand all you said. One of our MM providers started making RSO gummies and also distills tinctures. I seem to recall reading that Ceres is a full spectrum (aka RSO) producer. I looked for that… read more

Advice On What To Do Now. I'm In Pain 24-7. After I Had The Last Procedure Of Burning The Nerves On Left Side I Can't Do Anything.
A MySpondylitisTeam Member asked a question 💭

I have myofascial pain, Cervical Spondylosis, Cervicogenic Headaches, chronic neck pain, degenerative cervical intervtebral disc. After the doctor did the last procedure I've been in so much pain, I've read that you are soppose to be awake I was put to sleep this time. Mind you I had the right side done and was awake. Now my arm goes numb when I stand. I'm not one to complain to others about my health. Noone understands

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A MySpondylitisTeam Member

I have had the RFT nerve burn every six months for sciatica pain down my legs for over 20 years. It is the only procedure to give me that relief. I was in the original study with a top pain physician… read more

Do You Find Yourself Stretching And Moving Throughout The Day?
A MySpondylitisTeam Member asked a question 💭

It sounds like fidgeting but it’s different. It’s from pain and not being able to stand or sit for any period of time. Stretching out my back, shoulders, ankles, hips. It’s most annoying when I’m trying to sit and have a conversation with family or friends. The itching and scratching from the Psoriasis must be a bonus for my audience 😭

Does anyone have a regular need to stretch and move (up down up down) throughout their day ?

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A MySpondylitisTeam Member

Hi KatJSassaman. God gave us reason. Pain is the body's warning that it is sick. The body is asking for help. It manifests itself in pain! We ignore the body. He gets NSAId instead of help. But that's… read more

Does Amitryptiline Have A Reputation For Putting Weight On You?
A MySpondylitisTeam Member asked a question 💭

Has anyone gained lots of weight whilst on it?

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A MySpondylitisTeam Member

My experience is a good nights sleep and no weight increase.
I found this which might help https://pubmed.ncbi.nlm.nih.gov/872612/

Wondering If Anyone Has Similar Pain And If So Recommendations
A MySpondylitisTeam Member asked a question 💭

Does anyone else experience constant severe pain in their shoulder and thoracic region? Nothing has helped reduce the pain aside from meds that bring it down to a its definitely there and cannot be ignored state. It feels like it's bruised. Lots of popping and grinding upon shoulder movement. OT mentioned imaging to see if i dont have a torn derma or ligament.

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A MySpondylitisTeam Member

I’m so sorry for what ur going thru and have been thru 😭 praying for u