I had never heard of it either. I was diagnosed in December. Trying to research and learn as much as I can. Good luck! 😊
I have ankylosing spondylitis. Has anyone developed uveitis over time from your arthritis? I have had bilateral torn retinas, later a detached retina, and a cataract removed. I continue with inflammation in the eye I had surgery for detached retina. I am currently on Humira and methotrexate injections and take prednisone eyedrops until this inflammation quiets down before I can have eye surgery again. This has been an ongoing issue for me. Anyone have eye issues? If so, I would like to hear your… read more
I have had two cataracts removed about 4 1/2 years before being diagnosed with spondylitis. I had no pain in my eyes, just foggy vision (like looking through misted (or iced up) windows).
The sun was out very bright yesterday first the first time all winter. So I decided to go outside and sit. I had to face the dark paint on the House. My eyes started to burn badly. I had to come inside and shut the curtains and close my eyes. It was awful. Never had this before. This morning they feel all puffy. Anyone ever had this?
I've found that sometimes my AS causes light sensitivity and my eyes get red and really irritated. Almost like terrible dry eyes. So I started using systane eye drops every night after my shower. Have… read more
They are withholding my Humira script because I had a basil cell cancer spot on my ear removed last May 2023. I started it March 2023. It was biopsied, cut out, and healed perfectly. I've been without and the process looks like they need the derm doc to call them and let them know I don't have cancer. I had a bad rep who told me to get the information from them and call back with it. Then I was told they need the doctor to call. I understand but 2 hours on the phone of misinformation and… read more
How bad it is
I am seeing a rheumatologist this week and am hoping for the possibility of a prescription for some of the self injecting pain relievers. Because of the Opioid problem, my regular doctor will only prescribe 12 Vicodin a year, which just isn’t sufficient when I need it. I may not need it very often, but might need one 4 days in a row. I have been taking Vicodin for 40 years and used to get a prescription of 60 a year, which I never abused. Sometimes my back will go into a spasm so severe… read more
I understand all you said. One of our MM providers started making RSO gummies and also distills tinctures. I seem to recall reading that Ceres is a full spectrum (aka RSO) producer. I looked for that… read more
I have myofascial pain, Cervical Spondylosis, Cervicogenic Headaches, chronic neck pain, degenerative cervical intervtebral disc. After the doctor did the last procedure I've been in so much pain, I've read that you are soppose to be awake I was put to sleep this time. Mind you I had the right side done and was awake. Now my arm goes numb when I stand. I'm not one to complain to others about my health. Noone understands
I have had the RFT nerve burn every six months for sciatica pain down my legs for over 20 years. It is the only procedure to give me that relief. I was in the original study with a top pain physician… read more
It sounds like fidgeting but it’s different. It’s from pain and not being able to stand or sit for any period of time. Stretching out my back, shoulders, ankles, hips. It’s most annoying when I’m trying to sit and have a conversation with family or friends. The itching and scratching from the Psoriasis must be a bonus for my audience ðŸ˜
Does anyone have a regular need to stretch and move (up down up down) throughout their day ?
Hi KatJSassaman. God gave us reason. Pain is the body's warning that it is sick. The body is asking for help. It manifests itself in pain! We ignore the body. He gets NSAId instead of help. But that's… read more
Has anyone gained lots of weight whilst on it?
My experience is a good nights sleep and no weight increase.
I found this which might help https://pubmed.ncbi.nlm.nih.gov/872612/
Does anyone else experience constant severe pain in their shoulder and thoracic region? Nothing has helped reduce the pain aside from meds that bring it down to a its definitely there and cannot be ignored state. It feels like it's bruised. Lots of popping and grinding upon shoulder movement. OT mentioned imaging to see if i dont have a torn derma or ligament.
I’m so sorry for what ur going thru and have been thru 😠praying for u