I was diagnosed in Dec. I am trying to exercise (yoga), walk, drink lots of water, eat healthier, etc..Pray daily, couldnt go without it..
Does the pain get better or lesser? How do you deal with it and daily stress?
That was diagnosed in 1984 and my first flare was 14 years earlier.. There was no internet or other resources to figure out or research what I had and what to expect. So I just lived forward and dealt… read more
I'm on Gabapentin 600mg 3 times a day. A hot bath soak and after I put on a Flector patch. All of the above lasts but a short while.
Unconventional things I have done/do to relieve pain, and go!
Lay on floor on my back with two tennis balls taped together to support my neck or help stretch my neck.
Lay on bed on large medication bottle in mid back to aid stretching, deeper releif.
Next?
Awesome for you!
Keep us posted from month to month if you would. I would really like to know if it works.
Thanks Craig
Congratulations!
Find a different doctor if that doesn’t work find another doctor etc. Don’t take no for an answer. Love and forgive yourself for not having a pain free body. You are worth more than your pain. Hugs… read more
I am seeing a rheumatologist this week and am hoping for the possibility of a prescription for some of the self injecting pain relievers. Because of the Opioid problem, my regular doctor will only prescribe 12 Vicodin a year, which just isn’t sufficient when I need it. I may not need it very often, but might need one 4 days in a row. I have been taking Vicodin for 40 years and used to get a prescription of 60 a year, which I never abused. Sometimes my back will go into a spasm so severe… read more
I understand all you said. One of our MM providers started making RSO gummies and also distills tinctures. I seem to recall reading that Ceres is a full spectrum (aka RSO) producer. I looked for that… read more
Will be switching to Medicare in a few months and in researching my options I'm finding Enbrel will cost me about $5000 more per year than it does on my current health insurance. What have other people done when moving to Medicare?
Amgen works with a program called Saftynet Fondation , if you qualify you pay 0$ for your Embrel… Contact them
I am looking for alternative treatments for my AS. Will be on pure Medicare this next year and I’m very doubtful that I will be able to afford my humira. If you are using or have tried using either the full product or the cbd (without thc) I would love the feed back. Also if you know a source for good cbd, product descriptions are sketchy online. ( I can buy from 9 to 120 and they all read the same) thank you!
I have read many articles that suggest physical therapy as a component of an AS treatment plan.
My doctors have never suggested PT. I was an avid golfer in my past life. When I ask about returning to golf, in the future they do not respond. Granted, that currently I lack the energy and the ability to to retrieve my golf ball from the hole but when ask what my goals are, one is to play golf again.
Would PT help?
Yes. I recieve treatment from a specialized physical therapist in AS and i find it so helful and relevant. My goal is to walk painfree for at least 30 minutes so i have a plan designed by my physical… read more
My Rheumatologist experiments with biologics on me to control disease progression. So far I've been on 5 to no avail. In less than 48 hours after my last injection I developed acute bronchitis and sinusitis, a listed possible side affect. Now I'm not feeling the potential benefit is worth the risk. Because biologics target specific cytokines, it makes sense that the biologic won't help if that specific cytokine is not present. Now I'm wanting to get a cytokine panel to determine which ones are… read more
@A MySpondylitisTeam Member. Maybe. Testing for cytokines definitely needs to be made available and covered by insurance. However, making more and better informed drs won't help at all if patients… read more
I have had three sets of nerve block injections over the past seven months. I am scheduled for radio frequency ablation in 12 days. I am wondering if people get relief from them. Thanks in advance.
For those who had RFA in this post, did it ultimately help you or hurt you?