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Real members of MySpondylitisTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
2250 questions
Low Red Blood Cell Count
A MySpondylitisTeam Member asked a question πŸ’­

Hi, I've a low red blood cell count, which I realise can be linked to chronic inflammation and AS, and I suspect could be significantly influencing my fatigue & brain fog. I'm not wanting to go on medication, but does anyone have any advice or experience of similar and how they resolved?

A MySpondylitisTeam Member

Thanks both, much appreciated

posted May 3
What Do I Do To Neck Pain?
A MySpondylitisTeam Member asked a question πŸ’­
A MySpondylitisTeam Member

Yes, it took me 6 months or more of physio before full relief. I keep doing at home every day what I learned and it has not returned. That was about 6 or 7 years ago.

posted May 5
Anyone Had Experience With Cosyntex....???
A MySpondylitisTeam Member asked a question πŸ’­
A MySpondylitisTeam Member

I used Cosentyx for 3 years and felt it really helped me at first but it wears off early. We tried staggering the injections every 2 weeks and that helped. I just had some stomach issues with it so… read more

posted 5 days ago
I Am Unable To Take Pain Killers. Has Anyone Found Any Other Pain Relief Please
A MySpondylitisTeam Member asked a question πŸ’­

Polymyalgia

A MySpondylitisTeam Member

Thank you.

posted May 5
Do Any Body Get Stiffness In There Lower Back At All ? And What Kind Of Exercise Is Good For Your Lower Back? I Have RA In My Back
A MySpondylitisTeam Member asked a question πŸ’­
A MySpondylitisTeam Member

@A MySpondylitisTeam Member. What kind of problems?

posted April 29
Does Naproxen Slow Excess Bone Growth?
A MySpondylitisTeam Member asked a question πŸ’­
A MySpondylitisTeam Member

I don't think so. Diminish inflammation. Biologic is suppose to slow down the progression.

posted May 1
Hadlima Or Humira
A MySpondylitisTeam Member asked a question πŸ’­
A MySpondylitisTeam Member

Thanks for the advice!!!

posted April 27
I Bite The Back Of My Tongue While Sleeping, Both Sides.
A MySpondylitisTeam Member asked a question πŸ’­

I've been sleeping and have a spasm in my face, (it's not new) and I realized I'm biting down on the back of my tongue. When I first noticed it, it was on one side. Now it's both sides. It wakes me up. Does anyone else experience this?

A MySpondylitisTeam Member

I have had this happen. The first few times it woke me and I was afraid to go back to sleep. Does it feel like you jaw snap shut very suddenly? That is how it happens with me. I’ll be asleep and it’s… read more

posted April 28
What Vitamin D Is Good, What Brand?
A MySpondylitisTeam Member asked a question πŸ’­
A MySpondylitisTeam Member

Nature's Bounty

posted April 26
What Meds Are You Taking. My Arthritis Doctor Put Me On Talz For One Year. Now I Am Going To Start Taking Cosentex.
A MySpondylitisTeam Member asked a question πŸ’­

I have no problem taking meds that help me but the prices are ridiculously expensive like 3,000 a month so I said no, cannot afford and even though the meds do help with slowing down the progressing I have to say no. Does anyone taking these meds.

A MySpondylitisTeam Member

In canada cosentyx have a program for helping with the expense. They send me 3 seringue for christmas. And it change my life. Not perfect yet but cannot live without it.

posted May 1
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